Minutes of the APPGPC AGM

2pm, Tuesday 19th June 2018, Room M, Portcullis House

 

Parliamentary Members in Attendance: Nic Dakin MP, Nick Thomas-Symonds MP, Colleen Fletcher MP, Jim Shannon MP, Lord Aberdare

External Members in Attendance: Diana Jupp (CEO, PCUK), Ali Stunt (CEO, Pancreatic Cancer Action), Maggie Blanks (CEO, Pancreatic Cancer Research Fund), Fiona Brown (Development Manager, Pancreatic Cancer Scotland), Ross McLaren (Nic Dakin’s office), Professor Andrew Hart (UEA), John Lancaster (APPGPC member), Doug Goodman (APPGPC member), Professor Helmout Modjtahedi (Kingston University), Richard Cooper (APPGPC member), Tim Elliott (Department of Health and Social Care), Susan Speece (APPGPC member), Blair Sasada (PCA), Preth Rao (PCUK), Georgia Papacleovoulou (PCUK, Alfie van den Bos (PCUK- Secretariat of APPGPC)

 

  1. Welcome and Introduction

Nic Dakin (Chair) welcomed everyone to the meeting. He explained that the meeting was the Group’s Annual General Meeting (AGM), meaning it would focus on the election of Officers to the Group and on planning the All-Party Parliamentary Group’s future work programme.

  1. Apologies

Apologies had been received from Lord Porter and Lord Patel. Kevin Hollinrake also sent his apologies and informed the Group he could sadly no longer be involved with its work.

  1. Election of Chair and Officers for 2018/19

Jim Shannon moved that Nic Dakin be re-elected Chair of the APPG and this was approved unanimously. Nic informed the Group that he was happy to continue for another term but would look to hand over to a new Chair next time round.

Nick Thomas-Symonds moved that all existing Officers be re-elected, including Lords Porter and Patel who were happy to be re-elected in absentia, this was approved unanimously. In addition, Colleen Fletcher and Jim Shannon were elected as Officers unanimously.

  1. Group Secretariat

Nic Dakin explained that Pancreatic Cancer UK had acted Secretariat of the APPG since it was first established in 2012. He asked whether members were happy for the charity to continue in that role. There were no objections to this.

  1. Discussion of proposed privacy policy for APPG

Nic Dakin explained that due to the new General Data Protection Regulation (GDPR) the APPG was required to approve a privacy policy. Pete Meacham of Pancreatic Cancer UK has drafted this and was invited to explain it to the Group. Following this, there were no objections to adopting the policy for the APPG.

  1. Discussion around next year’s work plan

Nic Dakin talked the Group through the proposed work plan for the APPG, as drafted by Pancreatic Cancer UK.

He covered the planned meeting with Steve Brine MP, the proposed joint meeting on Multi-Disciplinary Centres (MDCs) with the APPG on Ovarian Cancer, the PCAM reception in November and a potential pan-APPG meeting in Summer 2019 on less survivable cancer issues.

The item on the forward plan that resulted in the most discussion was the proposed inquiry in 2019 and whether it should cover research or supportive and palliative care. Maggie Blanks proposed a combined research and palliative care inquiry which several attendees agreed with. Maggie was particularly keen for an inquiry to look into the availability of palliative and supportive care services for those affected by pancreatic cancer.

Preth Rao argued that there was currently not enough research on palliative care and pancreatic cancer issues.

However, she also suggested that some relevant data on the availability of services may already be in place and it would be worth exploring building relations with the APPG on Hospice and Palliative Care who have done a lot of work in this area. She also added that any inquiry on palliative care should also refer to wider supportive care topics such as diet, nutrition, pain relief and psychological support.

Andrew Hart made the point that palliative care was more complex than commonly thought and also included elements such as supportive care. He said that understanding of pancreatic cancer was not really a part of current medical education curricula. He supported combining the research and palliative care inquiries, especially if the APPG were able to prioritise more involvement from physicians.

Diana Jupp and Ali Stunt, among other attendees felt that while palliative care was hugely important, research was a more pressing opportunity given recent political developments around research funding for other cancers.

There were also questions around the scope and meaning of palliative care and research and what precisely was included in these topics.

Following this Nic Dakin stated that the idea of an inquiry was approved but more scoping needed to be done on the exact topic and nature of the inquiry.

  1. Presentation from Georgia Papacleovoulou, Senior Policy and Intelligence Manager at Pancreatic Cancer UK, on data outcomes

Georgia presented on the latest datasets on pancreatic cancer in the UK and how this compares to similar indicators in both Europe and the rest of the world, particularly in terms of diagnosis, survival and research funding.

  1. Presentation from Ali Stunt, CEO of Pancreatic Cancer Action, on raising awareness

Ali gave an overview of Pancreatic Cancer Action (PCA’s) campaigns to raise awareness of pancreatic cancer symptoms among GPs, pharmacists and members of the public.

  1. AOB

Nic Dakin asked if there was any other business. No other business was raised and the meeting was brought to a close.

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