Inquiries and Reports

The APPG on Pancreatic Cancer has held two inquiries into issues surrounding pancreatic cancer: one in 2013 and the Research Inquiry in 2014. In 2015, the APPG published a follow-up to the two inquiries, looking at progress made on implementing the Group’s recommendations.

The Need for Speed

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Need for Speed highlights why early diagnosis is vital to saving lives and how it can help to give people the best possible chance of living better for longer.

Over the course of three months, the APPGPC gathered evidence from patients, carers, family members, clinicians, researchers, policy makers, among others.

Six clear themes emerged from the inquiry which now form the basis of the recommendations detailed in the report.

Read the full report: Need for Speed.

APPG publishes follow-up report

Pancreatic Cancer Research and Care - A health check

The APPG has published a follow-up report to its two previous inquiries.

The report considers which of the APPG’s recommendations have been implemented, where progress has been made and where more progress is needed.

The report, “Pancreatic Cancer Care and Research: A health check” calls for the close monitoring of policies that meet the APPG’s recommendations to ensure the full potential for positive change is realised, as well as for the implementation of those recommendations not met.

In particular, it welcomes the development of a Clinical Guideline and Quality Standard for pancreatic cancer and the Government’s support for the Cancer Strategy, which includes measures aimed at improving early diagnosis.

However, it is of concern that little progress has been made on embedding a “culture of research” into the NHS, as recommended by the report of the 2014 inquiry “Pancreatic Cancer Research: A roadmap to change”. It is also worrying that pancreatic cancer patients continue to face a persistent lack of access to new treatments, demonstrated most starkly through the removal of life-extending drug Abraxane from the Cancer Drugs Fund list and NICE’s subsequent decision not to recommend the drug for use on the NHS.

Read the full report: Pancreatic Cancer Care and Research – A health check.

APPG Inquiry on research 2014

The APPG Inquiry into Research took place from May to September 2014.

During that time the APPG took written evidence from a number of different witnesses and held 4 oral evidence sessions, focusing on areas such as: levels of funding, international comparisons and greater levels of co-operation between research teams and institutes.

This Inquiry, by focusing Parliamentary and academic attention on pancreatic cancer research, will help to increase the quality and quantity of research into this field. Ultimately we hope that increased research will lead to the breakthroughs in early diagnosis and better treatments for pancreatic cancer that we all want to see.

Terms of reference for the Inquiry can be found here and transcripts from the oral evidence sessions are available below. Full lists of witnesses for each session can be found in the session summaries on our News and updates page.

APPG Inquiry 2013

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The first parliamentary APPG inquiry into pancreatic cancer issues covered awareness, diagnosis, treatment and care.

The APPG took evidence between May and September 2013 – including over 50 formal submissions from patients, their families and carers, as well as GPs, secondary health clinicians, nurses, NHS officials, professional bodies, the Department of Health and charities. The group also held five oral evidence sessions.

Scroll down the page to listen to evidence given at these sessions.

On 25th November 2013, the APPG on Pancreatic Cancer launched the findings report of their first inquiry that took place earlier in 2013.

Thank you to everyone who invited their MPs and local representatives to the event, where we informed them about the issues surrounding the disease and how they can help drive forward the recommendations in the Inquiry report.

The event was attended by the Secretary of State for Health Jeremy Hunt, who addressed the room, plus many politicians.

listen to Session 4a evidence - part 1
Listen to Session 4b evidence - part 1
Listen to Session 4a evidence - part 2
Listen to Session 4b evidence - part 2