All-Party Parliamentary Group on Pancreatic Cancer (APPG) – Privacy Policy

The APPG on Pancreatic Cancer takes your right to privacy very seriously. This privacy policy tells you how and why we use the personal information that you give to us. Your personal information will be treated in accordance with the General Data Protection Regulation (GDPR) which came into force on 25 May 2018.

About The APPG on Pancreatic Cancer

The APPG was established in 2012 by a leading group of parliamentarians with an interest in making a difference for pancreatic cancer.

An All-Party Parliamentary Group is primarily an interest group and provides a forum for MPs and Peers to meet and interact with stakeholders, to share ideas about issues and discuss ways to change the political landscape for the subject they’re concerned with.

The APPG provides an excellent forum for keeping pancreatic cancer high on the political agenda, for example, through debates and oral and written questions.

The Chair of the APPG, Nic Dakin MP is the Data Controller of the personal information that you provide when you sign up to become a member. As the secretariat for the APPG, Pancreatic Cancer UK is the Data Processor of the information that you provide through this website.

This Group is supported by a range of additional stakeholders which includes Pancreatic Cancer Action, Pancreatic Cancer Research Fund, NETS Patient Foundation and the Pancreatic Society of Great Britain and Ireland.

Any future use of the terms “us”, “we” or “our” is a reference to Pancreatic Cancer UK and references to “you” is to you, the user of this website.

How we obtain your data

We receive information directly from you if you are a member of the public who is interested in becoming a lay member of the APPG. We ask you to give us your name and email address so that we can stay in touch with you about our activities.

You might also choose to give us additional information about why you want to join the APPG. You are not required to give us this information and if you do so, we will keep a record of what you’ve told us.

If you are an MP or Parliamentarian, we either obtain your contact information from publically-available sources so that we can proactively contact you about joining the APPG or we obtain your contact information if you sign up to become a member on this website.

How we use your data

We will use your information to provide you with regular updates about meetings as well as the progress we are making in improving the way in which pancreatic cancer is diagnosed, managed and treated in the UK.

We will store and process your personal data for the purposes of the APPGPC on behalf of the Data Controller.

We may need to disclose your information if required to do so by law. In addition, we will not use your information for any other purpose than to tell you about the APPG unless you are one of our existing supporters.

How we keep personal data safe

We are committed to keeping any personal information safe and secure and all of our staff undergo comprehensive data protection training. All of our online forms are encrypted by an SSL certificate which means that the details on them cannot be accessed while the information is transferred to us.

We keep all personal information on our secure and password-protected database.

How long we keep your personal data

We keep personal data only for as long as it is necessary and in accordance with our internal data retention policy. If you have any particular questions about our data retention periods, please contact us at

The legal conditions we rely on to process personal data

If you are a lay member, we rely on consent to send you information about the APPG and you can withdraw your consent at any time by emailing If you’re an MP or Parliamentarian, we rely on our “legitimate interests” to contact you about the APPG and you have the right to opt out of receiving further information from us at any time.

Links to other websites

This website provides links to websites operated by other organisations. These organisations have their own privacy policies so please review these if you want to find out more about how they protect your privacy.

Your rights under the GDPR

The GDPR gives you more control over what happens to your personal information. Under this legislation, you have the right to:

  • be given clear, transparent and free information about how your data will be used;
  • access your personal data so that you can see how your personal information is being used by us;
  • have your personal information updated and corrected;
  • obtain and reuse the personal data you give to us for your own purposes;
  • request that we permanently delete or remove your information where there is no “compelling” reason for us to keep it; and
  • request that we don’t use your personal data for specific purposes and, unless we are under a legal or contractual obligation, we must respect your wishes

If you would like to exercise any of the rights outlined above please email us at We’ll respond to your request within 3 working days with an outline of the next steps.

Changes to this notice

We may revise this privacy policy from time to time. Any change will take effect once the revised privacy policy is available on this website. Please check the policy regularly for any changes.

If you have any questions about this privacy policy, please email us at